Futile. 

I’ve never felt so alone.
And, Ive spent my life feeling alone.
…didn’t know this kind of alone was even possible.

Pins and Needles.

My fingertips are pins and needles,
That tuck the hospital corners of your world,
and smooth the blankets of your mind,
It’s chaos, come to adjust the pillows ’round your heart,
Anxiety, come to massage your broken hands,
See my sparkling, salt encrusted crown of worry,
Ever thickening with hardness,
Never weakening with softness,
My fingertips are ten tiny doorways,
That seek you out, thus desperately
It’s a welcome party sporting shotguns,
It’s death, come to holler in the deafened ears,
Life, come to go away again,
See my hate-infused senses trying so hard to love,
Ever faltering with drunkenness,
Ever drinking in this emptiness.

Walk, Talk and Breathe.

Friends that refuse to respect of me,
the smallest of ways that I ask to be,
excused from their own stupidity,
yet – they choose to abuse,
and they find these things funny…
A family turned to the judge and jury,
no hand extended in my times of need,
the after-burn of that first, initial sting,
the day I noticed they were on an opposing team…
Others play the friendly role all too regularly,
to the point it’s obvious there’s no true identity,
behind any of the faces in the places close to me,
just life-sized puppets that walk, talk and breathe…

Delay.

FOREWORD:

They say that the delirium is late-stage cancer – nothing more. Perhaps it is, I can’t say at this point. What I can say is that the delirious woman is still my mom; is still worthy of my love and support; is still a person who I love very much, suffering…dying.

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Let me tell you a short (though, repetitive) story; one I have come to know by heart without consciously trying…one that plays itself out through each and every nightmare I have if I am lucky enough to fall asleep deeply enough…one that has come to define each and every “visit” I get with my mama, anymore:

The Bedpan: It is an inevitable circumstance, no matter where mama is.

In whichever facility that she is hospitalized, she is bedridden and increasingly unable to move without severe pain. She, therefor, has been reduced to a bedpan or commode when she is lucid, or, a fucking adult diaper, otherwise.

In her lucid times, the diaper must come off, else she have a massive coronary. During these interim of semi-coherence for her, is the perpetually running song and dance of trying to go to the bathroom. My mother is on diuretics for edema in her legs at present, and therefor has to pee like every 15-20 minutes no matter which state she is in…a detail that seems to define every moment that I spend with her anymore: the horrid revolving door of trying to get a fucking bedpan in time.

The orderlies and nurses are slow as molasses in any setting we have been; they seem to take pleasure in the circumstance of making my mama wait until she can’t hold it any longer, and a mess ensues, without fail.

Then, there I am: frustrated beyond words with the staff for letting this happen AGAIN; and there’s mama: so broken down and defeated by the humbling experience that she’s enduring, she just cries while I clean her up. Each and every time this occurs, it sinks my mama lower into her resignation to death and departure. Each time she cries, it does something to me that I can’t yet find the words to express accurately, but I can say with certainty that her tears in this context make me want to seriously hurt someone, or worse.

As a result of this hideous cycle of requests for basic assistance, delayed responses, messes to clean up, and mama’s subsequent withdrawal further into darkness, I have begun to absolutely dread going to see my dying mother at all.

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My New Mom.

Because of the collective whirlwind effect created by the sudden appearance of, and the subsequent hijacking of any former Life by this hideous reality, this thing known only as “my mama’s terminal cancer”:

  • I pushed it to the limit with keeping her with me at my house (actually, just a single rented room in a home shared with 2 bachelors) and nearly bit off way more than my can possibly chew;
  • I nearly pushed myself to the point of no return in regard to my own sanity and my own abilities;
  • I allowed myself to totally reside on the back burner for too long, and in turn began the cycle of forgetfulness and neglect in light of my own basic needs and any prior commitments made before the nightmare of Anticipatory Grief entered my day to day existence.
  • I stiffened my upper lip and sucked it up – I refuse to ask anyone for anything in the context of help with my mom, especially my new mom, due to her total and complete lack of any sense of self.
  • I moved her to a place where she isn’t going to be waited on hand and foot like I had been doing for her – having such a personal caregiver isn’t a good routine for her overall independence, despite what she says now.
  • Since the move, she has slowly declined in mentality to the point where as of now, she is too confused to find or answer her phone 9 times out of 10; she still cannot walk on her own either for some reason; she forgets her medicines and forgets to eat, she doesn’t shower at a;; anymore unless she is made to do so; she has no sense of humor, the only remaining thing about my former mama was the crazy thick hair – but that has fallen out now.

 

It’s like I have slowly come to be caring for a total stranger; this person is nothing like my mama. My new mom is stoic and scowls at me for no reason; she snaps at me for offering to help her with things when she is struggling.

 

“I wish you would just get out of my face for a change!”

 

This was what she hissed at me on New Year’s Eve, when I showed up to surprise her with some sparkling cider and pizza. She said she was tired of seeing my face whenever she opened her eyes. I left well before midnight and cried the whole way home.

Bent.

I am the face blended in on the train –
with open wounds bleeding blame and shame –
I am the darkness that protects the light –
blinded by a goal in sight –
I am the reasons why I hate myself –
just me to blame and nobody else –
I am the hatred in the moments alone –
when the place is quiet and nobody’s home –
I am the purpose that drives so many vessels on fire –
I am the face of the weary and tired–
I am not satisfied with the way things have become –
I am not going to accept what you’ve done –
I am the one who meant each word I said –
I am the one that you lied to instead –
I am the one who is sullen and down –
I am the reason none of my friends come around –
I am the cause of all things tragic –
I can make people disappear from my Life like Magic – 
I am the cultivator of this poisonous place –
I am afraid of my own body and face –
I cannot tell which creatures won’t bite –
I will eventually resign to this fight –
I am convinced that I’m better off without –
I am aware of what they’re all talking about –
I am the one who tied the original knot –
I guess that that’s a detail that each one forgot –
I am not filled with any cold from the snow–
I have mastered that defense system, you know –
I am a human fucking being –
I have a heart that pumps and bleeds –
I am not interested in dramatics and games –
be decent to me, and I’ll treat you the same.

Deep Blue.

It’s as if a snake,
has slithered its way,
down my esophagus today,

a darkening haze,
spills over my scene,
making static in my periphery,

the noise it makes,
sucking down the drain,
until it’s just an empty bathtub again,

genetically hungry,
a deep desire for your cake,
my tears fill the moments and my belly aches,

bleeding your name,
screaming final resignation,
begging for the warmth of your heavy domination,

body in detached withdrawal,
my heart’s never been this broken before,
and it won’t get better til you come back for more,

nothing else much matters to me,
as trivial as a granule of sand on the beach,
the world stops spinning when you step out of reach,

but, you know these things,
how I only dive this deep into blue,
on the days that follow a night spent with you.